I'm over on Substack now and I wrote a piece on being diagnosed with Restless Leg Syndrome (RLS). Give it a read: https://bentcolumn.substack.com/p/im-just-a-girl-diagnosing-part-7
Tag: RLS
Zebra looking for an umbrella
Having more than one disease complicates everything. Most of those diseases being rare and understudied turn those complications into catastrophes. Doctors don’t know what to do with you and they truly don’t care to try. When you are already suffering from a mystery, the last thing you want is for your doctor to quit helping. … Continue reading Zebra looking for an umbrella
When they ask, “What’s wrong with you?”
My officially diagnosed conditions and their medical definitions are as follows: Ehlers-Danlos Syndrome (EDS) - Hypermobility type: “A group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening … Continue reading When they ask, “What’s wrong with you?”
Always Bent Sometimes Broken 