We headed out on a hike around noon. While I typically try to avoid the hottest time of the day for physical exertion, it was a day that skewed cooler. Wearing shorts, a shirt and a hat, I lathered on sunscreen and sprayed a thick cloud of skin-friendly yet reliable bug repellent. There were a … Continue reading Vampire hike
Tag: Mast Cell Activation Syndrome
Be a mummy
I went on a quick camping trip. Planning for at least one hike a day and nights of stargazing, it wasn’t going to be a difficult mini vacation. I’m not prissy when it comes to being outdoors. I expect to get sweaty, buggy, grimy, smoky, and every other description that comes without indoor amenities. However, … Continue reading Be a mummy
Eight legged monster
I’m that person who typically ushers creepy crawlers and wayward fliers gently back outside. The major exceptions being wasps/hornets and some spiders. I keep a clean home and there isn’t much in the way of clutter. But, we all know how it is with bugs… they always find a way. One night recently, right before … Continue reading Eight legged monster
Invisible proof
What you didn’t know, was that you would spend the rest of your life trying to convince people that you are broken. Even as you wrestle with the daily mindfuck that is surviving with invisible conditions, people need you to prove your pain and symptoms. Your word isn’t enough. Descriptions of any detail will never … Continue reading Invisible proof
Skimming pills
Most chronic illness and pain sufferers take medications. We require synthetic and natural interventions to live our lives. Certain meds make things significantly better, others keep us at maintenance levels, and some have the very heavy burden of keeping us alive. Because of this dependency, our relationships with medical providers and pharmacists are of the … Continue reading Skimming pills
Seeking sameness
A while ago, I met a man who wanted to date a female version of himself. His complaints about potential matches usually revolved around their way of speaking, dietary choices, hobbies, opinions, romantic needs, taste in media, etc. Basically, he was dissatisfied with each person because they had a personality of their own. He would … Continue reading Seeking sameness
All over again
There isn’t much I could write about the general moving experience that hasn’t already been said. Most of us will move dwellings at lease once in our lives. Everyone knows it’s a hassle. I… well it’s hard to keep count… I have moved over 30 times. I’ve moved countries, states, cities, towns, villages, houses, apartments, … Continue reading All over again
Welcome to the bumpiest road
I’m not one of the lifers. My chronic conditions took over less than a decade ago. While I had experienced some symptoms earlier, my overwhelming and life-altering issues only developed in my late twenties. Of course, any amount of time with severe pain and symptoms feels like an eternity. Looking back to days of physical … Continue reading Welcome to the bumpiest road
What’s the alternative?
I’ve lost count of the number of prescription medications that I have tried. At last count, the number was creeping into the upper 50s. Yep. From the time of my first, body-destroying migraine until today, I have tried over fifty separate pharmaceutical drugs. I’m not counting the intravenous or in-hospital abortive meds. Just the pills, … Continue reading What’s the alternative?
The day after
Two of my least favorite things to hear from doctors and non-sufferers is, “Pain is all in the head” and “Mind over matter”. There are strong truths in both statements. Modern science has proven that pain is an interpretation by the brain. It does not originate where we feel it. Science has also shown that … Continue reading The day after