I’m just a girl – Diagnosing part 6 (Chronic Idiopathic Uticaria)

The term “hives” immediately brings to mind a body full of welts. I was always under the impression that they were caused by two things, anxiety or skin allergies. Growing up, I never suffered from hives or frequent rashes. My main allergy was/is dust. It causes my nose to run, eyes to itch, and a …

Advertisement

I’m just a girl – Diagnosing part 5 (Small Fiber Autonomic Neuropathy)

Numbness on the outside of my right leg. That was the starting point for my entire Small Fiber Autonomic Neuropathy journey. It’s a long one. Hold onto your hats and cozy up with a cup of tea. Here we go: I had recently come back to the United States after working overseas for a few …

I’m just a girl – Diagnosing part 4 (Ehlers-Danlos Syndrome)

I’ve always been bendy. It’s a talent that helped me stand out in dance classes and yoga. As a kid, it also made for a great party trick and an easy way to impress my friends. Can anyone fit in that box? Me! Who can reach the toy behind the sofa? Me! Can anyone match …

I’m just girl – Diagnosing part 3 (Postural Orthostatic Tachycardia Syndrome)

I just assumed that every person became light headed when they stood for an extended period of time. Standing up quickly or being overly active would always leave me with a spinning room and short light show. It was something I naturally compensated for through the years. I figured that everyone lived with these daily …

I’m just a girl – Diagnosing part 2 (Chronic Daily Migraines)

I didn’t have headaches growing up. None of my family or friends suffered from migraines. People having world shaking headaches was not something I knew anything about. I assumed that all headaches could be solved with rest and over-the-counter medications. I had no idea that my entire life would change the day I felt my …

Zebra looking for an umbrella

Having more than one disease complicates everything. Most of those diseases being rare and understudied turn those complications into catastrophes. Doctors don’t know what to do with you and they truly don’t care to try. When you are already suffering from a mystery, the last thing you want is for your doctor to quit helping. …

I’m just a girl – Diagnosing part 1 (Gastroparesis)

I was 18 years old and living in the American south. It was a new adventure after moving to the U.S just a few years prior. Being eighteen and still adjusting to a new culture, my life was a combination of amazing and incredibly stressful. It was a time before social media. The Internet was …